Home> #bigdataforbloodcancer> Big data to improve the care for people with Leukemia

Big data to improve the care for people with Leukemia

August 24, 2021 12:00 - x 00, 0 - 00:00

#bigdataforbloodcancer, Leukemia

The HARMONY Alliance aims to improve the care for people with Leukemia. We have created a unique Big Data Platform with > 70.000 anonymized European patient records. Our partnership with more than 100 organizations will accelerate blood cancer research.


HARMONY Big Data Analytic tools are used to enable doctors to rapidly select the most promising treatment strategy for an individual patient. In addition, we develop Core Outcome Sets for blood cancers and organize activities for various audience groups in the blood cancer field. The active involvement of patient organizations ensures that our work is well-aligned with the needs of patients with leukemia.


Patients involved

Among HARMONY’s partners are 9 European patient umbrella organizations, the HARMONY Patient Cluster, including Leukanet, Acute Leukemia Advocates Network (ALAN), CCI Europe/Childhood Cancer International, CLL Advocates Network (CLLAN), CML Advocates Network, Lymphoma Coalition, International MDS Alliance, Myeloma Patients Europe (MPE) and MPN Advocates Network. Our patient advocates and their patient communities are involved in defining Core Outcomes Sets, designing Research Projects and interacting with patients and their families.


Our activities in Leukemia


Our Focus


A selection of Our Key Questions


Our Research Projects


Our Delphi Projects


Our HARMONY Patient Organization Partners for ALL, AML, CLL, CML, MDS, MPN

           

 

 

 


Videos


#BigDataforBloodcancer: Tamás Bereczky, representing all HARMONY Patient Cluster Organizations through Leukanet, explains how we can help doctors treating blood cancer patients.


#BigDataforBloodcancer: Nick York, of CLL Advocates Network Healthcare Liaison Officer and leukaemia patient, explains HARMONY Delphi Surveys.


#BigDataforBloodcancer: Lars Bullinger, of Charité Berlin, explains news insights into Acute Myeloid Leukemia. 


#BigDataforBloodcancer: Paolo Ghia, of European Research Initiative on CLL, explains about CLL and HARMONY.

We are currently interviewing Prof. Ghia to share the latest Big Data in CLL developments, stay tuned.

 


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