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For patients & Carers

 

What is big data in patient care and what does it mean in hematology?


The HARMONY Alliance was established in January 2017 for a period of 5 years. This website offers a glance of who we are, what we offer and how we work. HARMONY is a European Network of Excellence for Big Data in Hematology, consisting of Partners and Associated Membersrepresentatives from Medical Centers, Universities, Patient Organizations, Medicines Authorities, Pharmaceutical Companies, Information and Communications Technology Companies and the European Hematology Association. Read more >>


"HARMONY helps to improve the prognosis and outcome of patients with hematological cancers, and is driven by knowledge derived from the combination and analysis of complex data. However, this will only make a difference to real patients if the evidence, findings and outcomes of the project are meaningful and relevant not only to patients, but also to medicines authorities, health technology assessment bodies, payers and policy makers. 

Through its Stakeholder Forum, HARMONY will collect input from patient organizations and all other stakeholders to discuss needs, gaps, opportunities and barriers, thus informing the implementation of the project across work packages. HARMONY will also support the decision-making process of regulators, HTA bodies and payers by assessing and developing hematology-specific evidence frameworks and clinical value frameworks that will help to quantify the therapeutic value of innovative technologies."

Quote by Jan Geissler, HARMONY Partner and Work Package 6 Leader, Founder and CEO LeukaNET


Big Data in Patient Care: What does it mean? Listen to the video interview with Egge van der Poel, Associate Dean Permanent Education for Professionals Jheronimus Academy of Data Science; Erasmus MC Clinical Data Scientist, The Netherlands. Egge van der Poel was invited by the HARMONY Alliance to provide an inspirational presentation during the HARMONY Interactive Session at the 1st European Alliance for Personalised Medicine Congress 2017, on 28 November 2017 in Belfast, Ireland.

                  

                 


Tamás Bereczky from HARMONY Partner Leukanet explains patient involvement in the HARMONY Alliance. Tamás Bereczky is also involved in the  European Patients’ Academy for Therapeutic Innovation.

                  

HARMONY Partner and Co-Chair Guillermo Sanz, Head of Clinical Hematology Section, Fundación para la Investigación del Hospital Universitario La Fe de la Comunidad Valenciana (HULAFE), explains the scientific impact the HARMONY Alliance is aiming for.

                  

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