To support the disease projects and ensure their quality and consistency, IMI (the Innovative Medicines Institute) has funded the Coordination and Support Action to promote 'big Data for better Outcomes, policy Innovation and healthcare Transformation' – DO-IT. This public-private partnership of 35 partners, co-led by LSE Health and Novartis, will provide:
Key outputs will include a Knowledge Repository to share BD4BO and DO-IT outputs, synthesising common learnings to support new partners and other researchers, and a practical and methodological Toolkit for measuring real world outcomes. DO-IT is developing a common strategic framework and producing minimum data privacy standards for informed consent forms. DO-IT will identify opportunities for collaboration, disseminate BD4BO's work and develop further research outputs.
A 1st General Assembly is planned in Berlin at 9 and 10 October 2017. More information soon to come.