New treatments for Acute Lymphoblastic Leukemia are currently being tested in studies across the world. Only a few assess the effects of the drugs on patients’ quality of life. In addition, each study uses its own measures to assess whether the treatment works. This makes it difficult to compare and combine studies. It is difficult to draw firm conclusions about which treatments are best.
At present, several innovative compounds are being tested in clinical trials in order to improve the treatment of Acute Lymphoblastic Leukemia (ALL). However, these trials measure different outcomes, thus questioning their comparability. In addition, the majority of clinical trials do not assess long-term side effects and their influence on the patients’ quality of life. A core outcome set (COS) may assist researchers in selecting outcomes for future trials, thereby promoting harmonization of ALL studies and improving clinical management of the disease.
Thank you very much in advance by the HARMONY Alliance Delphi Survey Team
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#bigdataforbloodcancer: Accelerating Better and Faster Treatment for Patients with Hematologic Malignancies.
The HARMONY Alliance (HARMONY and HARMONY PLUS) is a public-private European Network of Excellence for Big Data in Hematology. Our mission is to unlock and spread valuable knowledge on hematologic malignancies (blood cancers) among a large number of stakeholders, with the goal to harness and mine Big Data to speed up the development of improved treatments for patients and more effective treatment strategies.
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