7 European Patient Organisations united in HARMONY Patient Cluster

The HARMONY Alliance is a public−private partnership that aims to gather lots of information (big data) on blood cancer, to help answer important research questions which can improve treatments for patients.

A core part of HARMONY is its Patient Cluster, which is made up of 7 European patient organizations. Each of these organizations represents the 7 blood cancers HARMONY is researching. 

 

The HARMONY Patient Cluster plays an important role in designing research projects to make sure they reflect the patient view. Each patient organization also ensures patients within their communities receive the most up-to-date information on HARMONY projects.

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The HARMONY Patient Cluster is a unique group of 7 European Patient Umbrella Organizations working in the different areas of hematological diseases within the HARMONY Alliance. The 7 Patient Organizations combine years of expertise in patient-led scientific research and policy advocacy, and use this experience to the benefit of the affected patient communities. The Patient Cluster and their patient communities are consistently involved in the definition of outcomes, the design of Research Projects and the information of patients. In addition the Patient Cluster also make sure that there is a reliable bi-directional flow of information within and outside of the Alliance. For the first time in a major research project, the patient community sits at the table as truly equal partners to researchers, industry and regulators. The HARMONY Patient Cluster experience will also be captured and promoted in publications and on social media.

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