ABOUT US

Enabling data

Fostering collaboration

Transforming patient care

Mission

We empower the haematology community to share and harness data, advancing research and driving innovation to improve the lives of patients worldwide.

Vision

We imagine a future where open data sharing and scientific collaboration deliver personalised treatments and cures for patients with haematological malignancies.

Strategic Objectives

Innovation, data, and collaboration are our three main pillars to accelerate progress in the field of research in hematology.

Health Research, Innovation, and Scientific Advancement 

Data Management, Analytics, and Platform Development 

Collaboration, Knowledge Exchange, and Outreach

Boards and Team

Governance

Board of Trustees 

The Board of Trustees is the governing, representative, and management body of the Foundation which shall carry out the governance, representation, and administration of the Foundation in the best interests of the Foundation and for the better achievement of its purposes.

Board of Advisors

Data Hub

The HARMONY Alliance Foundation Data Hub provides scientific, technical, and analytical support across all disease areas to ensure the success of all the research projects carried out within the HARMONY Platform. 

Data Analysts

ÁNGELA VILLAVERDE RAMIRO

Senior Data Analyst

HELENA FIDALGO GÓMEZ

Data Analyst

Data Harmonization team

Data Quality Check and Curation Team 

MARÍA ABÁIGAR ALVARADO

PhD. Senior Data Scientist

MIREYA MOROTE FAUBEL

PhD. Senior Data Scientist

Executive Office

VALERIE BEHAN

Executive Director

SANTIAGO MORALEJO DEL ARCO

Senior Project Manager

ANA HERNÁNDEZ BLÁZQUEZ

Senior Project Manager

Would you like to collaborate with us?

Fostering data-driven collaborations since 2017

The HARMONY Alliance began as two ambitious projects funded under the Innovative Medicines Initiative (now IHI): HARMONY and HARMONY PLUS.

Launched in 2017 and 2020 respectively, these large-scale public–private partnerships brought together more than 100 organizations across Europe, including academic institutions, hospitals, patient organizations, regulatory agencies, and pharmaceutical companies.

The shared goal was to unlock the potential of Big Data to improve the treatment and care of patients with haematologic malignancies.

By building a secure, integrated platform containing anonymized data from over 120,000 patients, the HARMONY Alliance set a new benchmark for the use of real-world evidence in haematology.

Through data harmonization and collaborative research, it advanced disease classification, treatment evaluation, and patient stratification.

Following the successful completion of both projects, the infrastructure and momentum could not be left behind. To ensure sustainability and continued impact, this joint effort evolved into the HARMONY Alliance Foundation, a non-profit entity that now stewards the platform, promotes data sharing, and supports data-driven research. Today, the Foundation is a trusted partner for researchers, clinicians, and innovators seeking to advance precision medicine in blood cancers. 

Snapshot of our achievements from IHI-funded phase

Community of 500+ experts

from all sorts of backgrounds: clinicians, researchers, patients, statisticians, data scientists, regulatory affairs specialists, ethics experts, and many more.

128 organizations involved

from +34 countries. Including: Hospitals, Academic institutions, Medical Associations, HTA Agencies, Regulators, Patient Organizations and Pharmaceutical Companies.

33 research projects

addressing key research questions and resulting in numerous scientific communications sent to international congresses.

Robust Big data Platform

with a GDPR-compliant data life-cycle, integrated data services, and visualization and prediction tools.

Data lake with +120,000 records

Containing data in AML, ALL, APL, CLL, CML, MDS, MM, MPN, NHL, and paediatric HMs.

100+ Databases

harmonized to OMOP common data model.

Spain

  • PETHEMA – Programa Español de Tratamientos en Hematología
  • Jose Carreras Leukemia Research Institute
  • Spanish CETLAM Cooperative Group
  • Hospital 12 de Octubre – i+12 Instituto de Investigación
  • Hospital Universitario La Fe
  • Fundació Institut Mar D´Investigacions Mèdiques
  • Complejo Asistencial Universitario de Burgos
  • Ramon y Cajal University Hospital
  • Infanta Leonor Hospital
  • Costa del Sol Hospital
  • Hospital General Universitario Valencia
  • Catalan Registry of CML
  • Hospital Universitario de Gran Canaria Doctor Negrín
  • GESMD – Grupo Español de Síndromes Mielodisplásicos
  • FICUS – Fundación de Investigación del Cáncer de la Universidad de Salamanca / CIC Salamanca
  • Registro Gammapatías Castilla y León